A patient should:
+ own their entire health record (visits, medications, allergies, diagnoses, treatments, care plans)
+ be able to locate, validate and audit all stored copies, at any time
+ store the record in/on their body (device, wearables, in junk DNA, biological nano-organism or microchip implant etc)
A health record should:
+ be a single, unlosable, immutable source, stored with the patient
+ be anonymized and provided to public registries and repositories for the greater good (The records have data patterns which have insights, answers)
+ contain ledger recorded, verifiable transactions
A Provider should:
+ have reasonable, patient approved, revocable, access to the record
+ “append only” to the record
Medical systems may:
+ locate, query, retrieve, store and exchange versioned copies of the record
If you could design the perfect Patient Record, what would it look like?